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"No Child Deserves This Illness" Tower Challenge Day 2 Update


Monday 9th July 2012 - DAY 2 UPDATE



Tonight the Kids'n'Cancer charity cyclists are in Melton Mowbray - having completed Day 2 and 160 miles of their Tower to Tower to Tower challenge.

The riders are cheered in as they arrive at Autoworld in Chesterfield this morning
The riders are cheered in as they arrive at Autoworld in Chesterfield this morning

This morning the daring dozen were back on home soil for a brief time though, as they passed through Chesterfield (see video below) where they made good on their promise to donate funds to a local cancer sufferer.

Jessica Howarth is just 9 years old and attends New Whittington Primary School. Today, with her parents beside her, Jessica was presented with a cheque by the Mayor and Mayoress of Chesterfield on behalf of Kids'n'Cancer (pictured below).

Jessica Howarth is just 9 years old and attends New Whittington Primary School. Today, with her parents beside her, Jessica was presented with a cheque by the Mayor and Mayoress of Chesterfield on behalf of Kids'n'Cancer

Clearly still overwhelmed by the news and the generosity of the charity, Jessica and her mum Claire talked to us about just how Jessica has coped with a traumatic and distressing two year battle with cancer.

A chatty and friendly little girl, Jessica is surrounded by a close knit and supportive family, who it's clear are proud of the way she's handled the diagnosis and the treatment which is ongoing.

Jessica and mum, Claire.
Jessica and mum, Claire.

Mum Claire takes up the story, "Jessica was diagnosed in August 2010 with Acute Lymphoblastic Leukaemia, and she has remained in remission for 23 months. She finishes treatment in January but it has been a hard tough journey - but she looks marvellous today."

The effects of the diagnosis, says Claire, were devastating, "It turned our life upside down when Jessica was diagnosed - it's like living on a knife's edge all the time - through the first year of intense treatment she missed a lot of school and she was prone to infections, some were quite serious but she managed to fight them off. She's one brave little girl - she gets me through it.

"This money will help and Jess has plans for it! She wants her bedroom doing up to improve her life and with the rest of it, she would like to go to London and see a show, as a family.

"It has had such an impact on the rest of the family. I have a younger son Ryan, and it's just been horrendous - but we live day to day - even now. She was only in hospital the other week through multiple infections, but she gets on with it and takes it in her stride - and that's remarkable."

Claire was fulsome in her praise of the charity and others who have rallied round when they were needed, "The community as a whole has been fantastic, there's a fundraiser coming up and that's down to Donna Owen and she's brilliant. It's all word of mouth, and that's what led to today. I'm overwhelmed - it's lovely."

Asked for her advice to parents who are also on the journey that the Howarth family have begun, an emotional Claire said, "My goodness, it is take every day as it comes, take deep breaths and hope for the best. Jessica's particular cancer is cyto-genetic, so she had to go on the highest regime of treatment - which is very toxic.

"She finished the treatment in January and it's 5 months until her body gets rid of the toxins and we know whether her body has been suppressing the cancer, but we'll deal with that when it comes. It becomes normal, but absolutely no child deserves it and I wish Sophie (Roberts) all the best."

Jessica herself said that, "The treatment is hard, and long, and sometimes painful."

And Claire continued, "She still has blood counts every week, and that determines her level of infections and that determines where we can take Jess. She also has 3 monthly lumbar punctures and chemo in her spine. She's been remarkable but she enjoys school. We're very proud of the boys who are cycling and raising money for children like Jess."

On Saturday, the Baker family Sarah, Adam, Roman and Issaac will begin the journey to Jacksonville in Florida where 3 year old Roman will begin Proton Therapy treatment for a brain tumour.

On Saturday, the Baker family Sarah, Adam, Roman and Issaac (above) will begin the journey to Jacksonville in Florida where 3 year old Roman will begin Proton Therapy treatment for a brain tumour.

A lively and chatty little boy who is at ease with everyone and charmed all at the event this morning, Roman has suffered since a young age and the treatment in the US represents what the family hope is his best chance of overcoming the illness and beginning to live a more normal life.

Dad Adam told The Chesterfield Post about Roman's battle, "He started with eyesight problems as a baby and we took him to a doctor who referred him to opticians. After 6 months of saying he had healthy eyes, they referred us to the Queen's Medical Centre who told us he had a brain tumour and he's now had 3 operations.

"They can't remove it, but it's like a cyst and it's pressing his brain. He's registered blind and has no sight in his right eye and very little in his left. He also has hormone problems, which are due to the pressure. The proton therapy should stop it growing and shrink it slightly."

The effect on Roman has been, "Devastating, all the way through. It's affecting his school - we've had to have special things put in to help him. We have to watch him so much more closely and it's had a massive effect on his childhood."

The trip to Jacksonville, says Adam, is a big deal for he family, "It's everything - a chance - it's so good we've been offered the chance, but it's 10 weeks in the US which is disruptive. Obviously, I won't get paid at work for those 10 weeks so this fundraising has been brilliant.

"We got referred from the hospital for Proton Therapy - they thought it was his best chance and we feel very lucky - and we're lucky the NHS has funded it. This fundraising will help us with expenses over there."

Like any family, the Bakers are apprehensive about the trip, but are trying to keep things normal for Roman and his 18 month old brother, Issaac. Too young to comprehend the enormity of the trip, Roman is hoping for a chance to see his Heroes, Buzz Lightyear, Woody and Jessie whilst he's receiving treatment."

The Mayoress gets her chance to become a 'Tower Challenger' as she's given her own cycling helmet this morning!
The Mayoress gets her chance to become a 'Tower Challenger' as she's given her own cycling helmet this morning!

The Mayor of Chesterfield, Cllr Donald Parsons was emotional as he spoke to us after meeting and talking to the families, "I'm not far off tears - today is about kids and it's hard to see kids suffering. The two children and their families are remarkable in what they have overcome and it's wonderful that Kids n Cancer and Autoworld are doing this for the children.

"I'm very proud. The charity has done Chesterfield proud and hopefully it will grow in order to help more children, though it's a shame that it is necessary and that children will suffer like this."

Chesterfield MP Toby Perkins was at Autoworld, Chesterfield to meet and pass on his support to the riders before they set off on the rest of the days 65 mile leg.
Chesterfield MP Toby Perkins was at Autoworld, Chesterfield to meet and pass on his support to the riders before they set off on the rest of the days 65 mile leg.

Chesterfield MP Toby Perkins
(above) was there to give his support to the team as they rested their legs and Olympian, Ellie Koyander joined in, along with her own Olympic Torch to show her support - and led the way for the riders (video below) to begin their short ride to the B2net for a quick photocall before resuming the rest of the day's ride.

The riders line up at the B2net with Chesterfield FC Vice President, David Jones, Olympian Ellie Koyander and Chesterfield FC Director, Chris Breeze
The riders line up at the B2net with Chesterfield FC Vice President, David Jones, Olympian Ellie Koyander and Chesterfield FC Director, Chris Breeze.

And the ride continues...

For latest updates from the riders and their progress, CLICK HERE.

 

 

 

 

 

 

 

 

 

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A unique gig, hoping to become an annual event, is being organised in Chesterfield in order to raise money for a leading cancer charity. More..

LEFT OUTSIDE ALONE-
Animal Welfare Workers are investigating after two young cats were found abandoned outside the rescue centre in freezing temperatures. More...

EVERY LITTLE HELPS -
A Primary School in Chesterfield is celebrating after being awarded £800 by a Supermarket Charity Trust. More...

Brrrrr RABBIT! -
The RSPCA has issued an URGENT appeal for homes for 22 rabbits that have been brought to their kennels in Spital this week. More...

STAVELEY MWFC'S GENEROUS GESTURE FOR SCOUTS CANADA TRIP -
A local company has made a generous donation towards a local scout group’s Canada trip after reading about the fundraising efforts in The Chesterfield Post. More...

ARE YOU UP FOR A CHALLENGE? -
Fairplay is a registered charity, dedicated to helping children with additional needs and their families. More...

LOVE LIGHTS UP HOSPICE -
Ashgate Hospice would like to say a huge THANK YOU to everyone who dedicated a light in this year's Lights of Love switch on More...

LOCAL CHILDREN AND B&Q MAKE XMAS SPARKLE FOR ASHGATE -
A Primary School in Chesterfield has helped to spread a little Christmas joy after a tree they decorated took pride of place at Ashgate Hospice. More...

RSPCA APPEAL -
The RSPCA is appealing for what it calls a 'special home for a very special pup' - a near-blind rottweiler called 'Mac' and his best friend - a kitten called 'Boyd'. More...

YOUR VOTE COUNTS -
The Football League would like your help to help them decide which charity The League should select to be its Official Charity Partner for Season 2010/11. More...

WILL YOU SHINE A LIGHT OF LOVE THIS CHRISTMAS THIS YEAR -
Will you be remembering someone special this Christmas? It was that time of year again, another summer had flown by and there was more than a nip in the air. More...

CAN YOU OFFER THESE HENS AN
EGG-CITING NEW
LIFE? -

The RSPCA in Chesterfield is urging people to consider buying Free range eggs after accepting 60 ex-battery hens into their kennels at Spital. More...

"BACK OF THE NET!" KICKING CASH FOR CHARITY -
Students from Chesterfield College gave a local charity a boost as they took part in a penalty shoot out to raise cash for Ashgate Hospice.More...

BEING CRUEL TO BE KIND? -
Chesterfield RSPCA are investigating the circumstances behind one of the most bizarre they've seen in 10 years at the Charity. More...

WIRKSWORTH ROTARY 5k SANTA FUN RUN -
The Rotary Club Of Wirksworth are staging a 5k 'Santa' fun-Run for the Rainbows and Ashgate Hospice Charities on Sunday 5th December 2010 at Carsington Water More...

A LONELY GOAT
HERD -

If you're an experienced goat owner (or a Military Regiment looking for your Regimental Mascot), with land to spare, then Chesterfield RSPCA is asking you to consider helping them. More...

PUPPY LOVE UPDATE -
The RSPCA in Chesterfield confirms that a woman claiming to be the owner of the pups has contacted them and after checks, they have been reunited. More...

PUPPY LOVE -
RSPCA bosses are appealing for help in tracing the people who dumped Barnaby and Benji last week in a Chesterfield field. More...

REMEMBER THEM -
The Chesterfield branch of the Royal British Legion is asking residents to do just that and buy a poppy as the town launched it's annual Poppy Appeal Saturday. More...

BARGAIN HUNT BONANZA -
There was everything to pay for as the Mayor and Mayoress took part in a charity Bargain Hunt on Chesterfield's very own flea market on Thursday, More...

WHY YOU REALLY SHOULD "GO TO SPECSAVERS" THIS WEEKEND -
Have you ever looked at the 'Mr Men' characters and thought, what about one called Mr ??? More...

ASHGATE WINTER BALL, 27/11/10 -
Ashgate Hospice are holding their 'WINTER BALL' on Saturday 27th November, 7pm for 7:30 until 1am at The Winding Wheel in Chesterfield. More...

MARIE CURIE CANCER CARE LOOKING FOR SUPPORTERS HELP -
Derbyshire Fundraiser, Laura Read is inviting anyone who is interested to come along to an informal meeting. More...

DROP IN CENTRE OPENS IT'S DOORS -
The Nenna Kind centre is situated in Room 5 on the 2nd floor of the Market Hall and offers support and advice in a welcoming environment for anyone affected by cancer. More...

HOPE FOR AFRICA -
As children in Chesterfield prepare to return to school this week one charity is promoting the message that  ‘In Africa, education is a privilege not a right‘. More...


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